Race for RARE

Thursday, June 7, 2018

Rrunners and walkers pose for a photo after the second annual Race for RARE event in Glendive on June 2. The 5K race, which was started last year nationwide by the Joubert Syndrome and Related Disorders Foundation, started locally at Lloyd Square Park and took participants across the Bell Street Bridge and back. The foundation started the event last year to raise awareness and proceeds for those with Joubert Syndrome and other rare diseases. Glendive residents Ty and Cassie Meiers’ son Jax is one of only three children in Montana with Joubert Syndrome. Cassie has organized the Race for RARE event in Glendive, raising nearly $3500 last year alone to go to the foundation. For Meiers, events like the 5K are important because the shed much needed light on an often overlooked issue. “I think it’s just important that the community knows, it’s hard because we live in a small community and we’re rural and special needs are just not as common,” Meiers said. “It’s just nice to bring the community together and raise awareness and educate people about special needs.”

Chris Deverell photos